But, creaks, tightness, and all, I am grateful for my body
and abilities. I am upright and mobile. I can still do everything that I love
-- bike, swim, and kayak (okay, I need some help getting in and out). And, I
can still do household chores.
My gratefulness comes from a friend’s example. Last week, I got closer
view of what it’s like to be disabled. A longtime friend, who suffers from
post-polio syndrome, was in town. She arrived in her kitted-out
minivan with an electric ramp and power wheelchair.
Post-polio syndrome is not uncommon for individuals who were
stricken with polio. Decades after the
initial polio illness it can cause weakness, pain, fatigue, and muscle atrophy.
Physically, my friend is not the person I met 35 years ago. But, while her
stamina and endurance may be limited, her spark and spirit seem limitless.
She powered over our doorstep into our home and back into
our lives.
Other guests during her visit ranged in age from 8 to
68. Our “disabled” friend took over the
rainy day activity planning and coordinated a trip to the nearby science center.
She was firm; we must see all the exhibits and stay for the planetarium show to
see a movie about astronauts.
Like a seated Mary Poppins, she was prepared, brisk, and
effective. She’d arrived early and seemed to know everyone on the staff. She powered through the exhibits providing an
implicit invitation to see her world, if only briefly and superficially. Not
every doorway was easily accessible – the opening would be too narrow or the
door lacked the needed pushbutton. A remodeled 1927 school, the science center had
no ramps. The routes were circuitous. For her to get between floors required a cramped
wheelchair lift and a museum staffer’s help.
So, yes, it was a perspective I’d never had, on being
dependent on sensible and accessible design and on the immense contributions of
the Americans With Disabilities Act of 1990 (www.ada.gov).
My friend, with her vibrancy, is aging as gracefully as
anyone I know. As for me, with my dependence on activity and endorphins and
fresh air, I need to take note of her approach.
I like how the late Hugh G. Gallagher, another polio (as
polio survivors call themselves; the plural is polios), put it. This author and activist, among many other
accomplishments (Gallagher wrote FDR’s
Splendid Deception about President Roosevelt’s polio history), wrote:
“Polios have a certain advantage over the
able-bodied when it comes to aging…. We do not confuse the quality of our
life with the quality of our tennis game. We know that happiness is not
dependent upon activity nor is meaningful defined by trophies. A meaningful life
may be hampered—but need not be defined—by pain or disability.”
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Hampered, not defined. Wow.
Will I remember my friend’s example and Gallagher’s
perspective when the bike is left to rust, the kayak on loan, and going swimming
means walking in the pool?
I hope so.